Should we celebrate a long awaited diagnosis?

A teal background with black and white text, “Celebrating diagnosis? Celebrating diagnosis is not celebrating illness. It’s about getting answers and care BUT-- Your illness is real without a diagnosis. You should receive support without a diagnosis.
A teal background with black and white text, “Celebrating diagnosis? Celebrating diagnosis is not celebrating illness. It’s about getting answers and care BUT– Your illness is real without a diagnosis. You should receive support without a diagnosis.

For those who are only familiar with acute illness, the concept of celebrating a diagnosis is akin to celebrating being sick. But for people who have been sick for months/years/decades without a diagnosis, getting clear answers is certainly something to celebrate. It gives us and our care providers a structure of what to expect: a name, an idea of how the illness progresses, and treatment/management options.

At the same time, I think it’s important to push back against the other ways diagnosis currently functions. Your illness is real without a diagnosis. You should be able to receive accommodations and support without a diagnosis. You are not worth less for being sick.

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